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Optimizing Rare Disease Clinical Trials Through Patient Experience

 
  July 31, 2023  
     
 
Xtalks, online
2023 -9-14


Clinical trials play a crucial role in advancing medical research and developing treatments for rare diseases. However, a staggering 80 percent of rare disease clinical trials fail to finish on schedule, posing significant challenges for affected patients and communities. This upcoming webinar will explore the importance of patient experience through valuable insights from industry experts and best practices to enhance trial success rates.
 
This discussion will highlight the impact of delayed or unsuccessful clinical trials on rare disease patients and their communities. The featured experts will explore current barriers to trial success, including recruitment and retention challenges, as well as methods to enhance patient experience throughout the life of the trial.
 
    
 
NODATA
 
This webinar offers a unique opportunity to gain invaluable insights into the challenges faced by rare disease clinical trials and how patient experience can be optimized to improve trial outcomes. Attendees will learn more about making a significant impact on rare disease research and improving the lives of patients and their families.
 
 
Organized by: Xtalks
Invited Speakers: Pam Cusick, SVP, Rare Patient Voice Monica Dudley-Weldon, Founder, SYNGAP1 Foundation KimberLee Heidmann, EVP Patient Experience and Customer Success, Scout Clinical
 
Deadline for Abstracts: 2023 -9-14
 
Registration: Free registration
E-mail: ajuurinen@xtalks.com
 
   
 
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